Needs of Individuals Living With Hepatitis Delta Virus and Their Caregivers, 2016–2019
What is already known on this topic?
Hepatitis delta virus (HDV) is a rare viral infection of the liver with potentially life-threatening consequences. Because of the rarity of the disease and a general lack of awareness, many patients may have gaps in critical disease-specific knowledge.
What is added by this report?
Little is known about the experiences of patients living with HDV. This qualitative study may be among the first to examine experiences of patients living with HDV and their caregivers to assess this population’s unique needs and challenges to care.
What are the implications for public health practice?
Identifying challenges to care and needs of HDV patients and their caregivers may help improve provider and public health practitioners’ ability to educate and care for this population.